What is cystic fibrosis?
Cystic Fibrosis (CF) is a congenital, serious hereditary multi-organ disease that leads to thick mucus in the lungs, providing a breeding ground for infections. In Norway, there are approximately 370 people with cystic fibrosis (as of 2018), with about 60 percent of them being over 18 years old. The disease can affect all organs, but the most significant complication is recurrent and chronic lung infections that, over time, damage the lungs.
Introduction to CF
Explore the Introduction to Cystic Fibrosis course on sjelden.no. This course is a collaboration between sjelden.no and the Norwegian Center for Cystic Fibrosis.
You can also listen to the episode about cystic fibrosis on the Sjeldenpodden podcast below.
Incidence and Diagnosis
Each year, 8-10 children are born with cystic fibrosis (CF) in Norway. Diagnosing CF can be a lengthy process involving various tests, and it can be confirmed in both children and adults.
Since 2012, CF has been included in Norway's expanded newborn screening program. Diagnosis is based on genetic analysis, sweat tests, and observed symptoms.