{"id":2362,"date":"2025-10-07T16:37:42","date_gmt":"2025-10-07T14:37:42","guid":{"rendered":"https:\/\/cfnorge.no\/?p=2362"},"modified":"2025-12-10T12:06:16","modified_gmt":"2025-12-10T11:06:16","slug":"brosjyrer-om-cystisk-fibrose","status":"publish","type":"post","link":"https:\/\/cfnorge.no\/en\/brosjyrer-om-cystisk-fibrose\/","title":{"rendered":"Nye brosjyrer om cystisk fibrose"},"content":{"rendered":"

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Brochures on Cystic Fibrosis <\/span><\/h1>\n

[\/et_pb_text][et_pb_text admin_label=»Tekst» _builder_version=»4.21.0″ _module_preset=»default» text_font=»Poppins|300|||||||» text_text_color=»gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24″ link_font=»Poppins|500|||||||» link_text_color=»gcid-edcc47c2-e936-4ba2-8e6c-8ca8cb2c2a05″ custom_padding=»||0px|||» global_colors_info=»{%22gcid-26e97d0d-b127-4ce1-b597-0df3fb01df24%22:%91%22text_text_color%22%93,%22gcid-edcc47c2-e936-4ba2-8e6c-8ca8cb2c2a05%22:%91%22link_text_color%22%93}»]<\/p>\n

We are proud and happy to present our new brochures on cystic fibrosis. The significant advances in CF treatment in Norway in recent years have created a need to update our informational materials. Many of our members are now experiencing a changed everyday life, and it is important that this is reflected in the information we share.<\/p>\n

Therefore, we have developed a new, comprehensive brochure called \"Living with CF\". It covers most aspects of life with CF, from medical information to support for different life stages and information for relatives. The brochure is available in both Norwegian and English. In addition, we offer smaller, topic-specific brochures that focus on individual themes and can be used separately as needed.<\/p>\n

We hope that the CF brochures, which you can download digitally below, will be a valuable resource for our members or others who want more information about life with cystic fibrosis. If you would like one or more brochures sent to you (with shipping costs covered by you), you can contact ylva@cystiskfibroseforeningen.no<\/a><\/p>\n

Thanks to Vertex Pharmaceuticals for financial support, and to our multi-diciplinary team for professional health-related input!\u00a0<\/em><\/p>\n

 <\/p>\n

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Click on the name below to download the PDF version of the brochure.<\/em><\/em><\/p>\n

Living with CF\u00a0<\/strong><\/a><\/p>\n

The main brochure, \"\u00c5 leve med CF\", is intended as a comprehensive reference work and is divided into 3 different sections that cover most aspects of life with cystic fibrosis. Here you will find everything from medical information about CF to topics such as different life stages with CF, as well as a chapter dedicated to relatives. The same information drawn from the larger brochure can also be found in the smaller, topic-specific brochures.<\/p>\n

Living with CF<\/strong><\/a><\/p>\n

\"Living with CF\" is the English version of the main brochure.<\/p>\n

Cystisc Fibrosis<\/strong><\/a><\/p>\n

In the brocure<\/span>In \"Cystisk fibrose\", (only available in Norwegian) you will find all the information about CF, from medical information to genetics, diagnosis, treatment, and infection control. This can be a great brochure to use if you need to distribute easily readable and clear information about CF.<\/p>\n

Livsfaser med CF<\/a>\u00a0<\/strong><\/p>\n

\"Livsfaser med CF\" (only available in Norwegian) addresses the various phases of life with CF and the topics related to them. The brochure begins with childhood, covering themes such as kindergarten and school. It then moves on to adolescence, where we read about puberty, sexuality, education, and partying habits. Furthermore, it focuses on adulthood, with topics such as working life and family planning. Finally, the brochure discusses growing older with CF.<\/p>\n

P\u00e5r\u00f8rende<\/a><\/strong><\/p>\n

The brochure \"P\u00e5r\u00f8rende\" (only available in Norwegian) is a brochure that addresses what it is like to be a relative og close one of someone with cystic fibrosis. Here, we read about the various relative roles, such as parents, grandparents, siblings, children of, or partner to someone with CF.<\/p>\n

[\/et_pb_toggle][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=»1_2,1_2″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»1_2″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][et_pb_image src=»https:\/\/cfnorge.no\/wp-content\/uploads\/2025\/10\/redigert1.jpg» title_text=»redigert1″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_image][\/et_pb_column][et_pb_column type=»1_2″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][et_pb_image src=»https:\/\/cfnorge.no\/wp-content\/uploads\/2025\/10\/redigert-4.jpg» title_text=»redigert 4″ _builder_version=»4.21.0″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>","protected":false},"excerpt":{"rendered":"

Vi i Norsk forening for cystisk fibrose, er stolte og glade over \u00e5 presentere v\u00e5re nye brosjyrer om cystisk fibrose. De betydelige fremskrittene innen cf-behandlingen i Norge i de siste \u00e5rene har f\u00f8rst med seg en behov for fornyselse av v\u00e5rt informasjonsmateriell. Mange av v\u00e5re medlemmer opplever n\u00e5 en ny hverdag, og det er viktig at dette reflekteres i informasjonen vi deler.<\/p>\n

Derfor har vi utviklet en ny, helhetlig brosjyre kalt \u00ab\u00c5 leve med CF\u00bb. Den dekker de fleste aspekter i livet med CF, fra medisinsk informasjon til st\u00f8tte for ulike livsfaser og informasjon til p\u00e5r\u00f8rende. Brosjyren er tilgjengelig p\u00e5 b\u00e5de norsk og engelsk. I tillegg tilbyr vi mindre, temaspesifikke brosjyrer som fokuserer p\u00e5 enkeltemner og kan brukes separat ved behov.<\/p>\n

Vi h\u00e5per CF-brosjyrene, som du kan laste ned digitalt under, kan v\u00e6re en verdifull ressurs for v\u00e5re medlemmer, eller andre som \u00f8nsker mer informasjon om livet med cystisk fibrose.<\/p>","protected":false},"author":6,"featured_media":2365,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"categories":[39],"tags":[],"class_list":["post-2362","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nyheter"],"yoast_head":"\nNye brosjyrer om cystisk fibrose - CF Norge<\/title>\n<meta name=\"description\" content=\"\u00ab\u00c5 leve med CF\u00bb. 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