CF and PCD

Cystic Fibrosis (CF) is a congenital, severe genetic disorder that causes thick mucus to build up in the lungs, making them prone to infections.

Primary Ciliary Dyskinesia (PCD) is a rare congenital condition caused by defects in the structure and function of the cilia, leading to mucus accumulation in the upper and lower airways.

The Norwegian Association for Cystic Fibrosis (NFCF) is an organization for individuals diagnosed with cystic fibrosis and primary ciliary dyskinesia, as well as their families and caregivers. 

CF and PCD

Cystic Fibrosis (CF) is a congenital, severe genetic disorder that causes thick mucus to build up in the lungs, making them prone to infections. 

Primary Ciliary Dyskinesia (PCD) is a rare congenital condition caused by defects in the structure and function of the cilia, leading to mucus accumulation in the upper and lower airways.

The Norwegian Association for Cystic Fibrosis (NFCF) is an organization for individuals diagnosed with cystic fibrosis and primary ciliary dyskinesia, as well as their families and caregivers. 

NEWS AND ARTICLES

Gi en meningsfull julegave i år!

Gi en meningsfull julegave i år!

Gi en gave med mening!I år kan du gi en skikkelig meningfyllt gave til jul. Nemlig en julegave til Norsk forening for cystisk fibrose. Det hele er gjort på 1-2-3 slik:  1. Vipps...

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Gi en meningsfull julegave i år!

Gi en meningsfull julegave i år!

Gi en gave med mening!I år kan du gi en skikkelig meningfyllt gave til jul. Nemlig en julegave til Norsk forening for cystisk fibrose. Det hele er gjort på 1-2-3 slik:  1. Vipps...

read more
Nye brosjyrer om cystisk fibrose

Nye brosjyrer om cystisk fibrose

Brosjyrer om cystisk fibrose Vi er stolte og glade over å presentere våre nye brosjyrer om cystisk fibrose. De betydelige fremskrittene innen cf-behandlingen i Norge i de siste...

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Number of people with CF in Norway

%

18 years or older

%

Children

"Being a grandmother is a gift. My grandchild is cheerful and full of life, despite cystic fibrosis which affects the lungs and stomach. We delight in his smile, but worry about treatments and infections. We adapt our lives to protect him, washing hands and being careful. Everything for our grandchild."

- Grandmother to a child with CF

Number of people with PCD in Noray

%

18 years or older

%

Children

Being a parent to a child with PCD means a lot of extra planning and care, but it also teaches you to appreciate the moments that are completely ordinary for others.

– Father of a child with PCD

Need someone to talk to?

NFCF has a nationwide network of contact persons, which we callpeers. They are available for anyone who needs someone to talk to. They are either parents of children with CF or adults living with CF themselves. You can contact one of our peer supporters directly. We also have closed Facebook groups where you can chat with like-minded people.

Support us

We are grateful for all
contributions to our work.

Support us

We are grateful for all
contributions to our work.

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