CF and PCD
Cystic Fibrosis (CF) is a congenital, severe genetic disorder that causes thick mucus to build up in the lungs, making them prone to infections.
Primary Ciliary Dyskinesia (PCD) is a rare congenital condition caused by defects in the structure and function of the cilia, leading to mucus accumulation in the upper and lower airways.
The Norwegian Association for Cystic Fibrosis (NFCF) is an organization for individuals diagnosed with cystic fibrosis and primary ciliary dyskinesia, as well as their families and caregivers.
CF and PCD
Cystic Fibrosis (CF) is a congenital, severe genetic disorder that causes thick mucus to build up in the lungs, making them prone to infections.
Primary Ciliary Dyskinesia (PCD) is a rare congenital condition caused by defects in the structure and function of the cilia, leading to mucus accumulation in the upper and lower airways.
The Norwegian Association for Cystic Fibrosis (NFCF) is an organization for individuals diagnosed with cystic fibrosis and primary ciliary dyskinesia, as well as their families and caregivers.
NEWS AND ARTICLES
Meld deg på læringshelg og jubileumsfeiring 24-26.april!
Norsk forening for cystisk fibrose fyller 50! Kjære medlemmer og støttespillere. I år er det hele 50 år siden foreningen ble etablert en desemberdag i 1976 med et lite...
Invitasjon til fagdag og årsmøte i region midt, lørdag 7.februar på Teams
Kjære medlemmer i region midt. Vi inviterer til fagdag og årsmøte lørdag 7. februar 11:00 til ca 13:0, på teams. Program: 11.00 –12.00: FAGDAG: Digitalt innlegg ved Ellen...
Meld deg på læringshelg og jubileumsfeiring 24-26.april!
Norsk forening for cystisk fibrose fyller 50! Kjære medlemmer og støttespillere. I år er det hele 50 år siden foreningen ble etablert en desemberdag i 1976 med et lite...
Invitasjon til fagdag og årsmøte i region midt, lørdag 7.februar på Teams
Kjære medlemmer i region midt. Vi inviterer til fagdag og årsmøte lørdag 7. februar 11:00 til ca 13:0, på teams. Program: 11.00 –12.00: FAGDAG: Digitalt innlegg ved Ellen...
Oppdatering fra Vertex om CF-behandling januar 2026
Vertex er firmaet som produserer CFTR-modulatorer som vi bruker i Norge. De som foreløpig er på markedet er Alyftrek, Kaftrio, Symkevi, Orkambi og Kalydeco. Her kommer en...
Number of people with CF in Norway
%
18 years or older
%
Children
"Being a grandmother is a gift. My grandchild is cheerful and full of life, despite cystic fibrosis which affects the lungs and stomach. We delight in his smile, but worry about treatments and infections. We adapt our lives to protect him, washing hands and being careful. Everything for our grandchild."
- Grandmother to a child with CF
Number of people with PCD in Noray
%
18 years or older
%
Children
Being a parent to a child with PCD means a lot of extra planning and care, but it also teaches you to appreciate the moments that are completely ordinary for others.
– Father of a child with PCD
Need someone to talk to?
NFCF has a nationwide network of contact persons, which we callpeers. They are available for anyone who needs someone to talk to. They are either parents of children with CF or adults living with CF themselves. You can contact one of our peer supporters directly. We also have closed Facebook groups where you can chat with like-minded people.
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